[1]刘劭菲,陈妙盈,黄宝琴,等.孤独症儿童的家庭管理特征潜在类别及其影响因素分析[J].军事护理,2023,40(08):25-29.[doi:10.3969/j.issn.2097-1826.2023.08.007]
　LIU Shaofei,CHEN Miaoyin,HUANG Baoqin,et al.Latent Profile and Its Influencing Factors of Family Management Characteristics in Children with Autism Spectrum Disorder[J].Nursing Journal Of Chinese People's Laberation Army,2023,40(08):25-29.[doi:10.3969/j.issn.2097-1826.2023.08.007]
点击复制

孤独症儿童的家庭管理特征潜在类别及其影响因素分析
分享到：

《军事护理》[ISSN:2097-1826/CN:31-3186/R]

卷:
40
期数:
2023年08期
页码:
25-29
栏目:
研究荟萃
出版日期:
2023-08-15

文章信息/Info

Title:
Latent Profile and Its Influencing Factors of Family Management Characteristics in Children with Autism Spectrum Disorder
文章编号:
2097-1826(2023)08-0025-05
作者:
刘劭菲1; 陈妙盈2; 黄宝琴3; 冀彦2; 邓涛1; 张利峰1
(1.中山大学 护理学院,广东 广州 510080; 2.中山大学附属第三医院 儿童发育行为中心,广东 广州 510630; 3.中山大学附属第三医院 妇儿科)
Author(s):
LIU Shaofei1; CHEN Miaoyin2; HUANG Baoqin3; JI Yan2; DENG Tao1; ZHANG Lifeng1
(1.School of Nursing,Sun Yat-sun University,Guangzhou 510080,Guangdong Province,China; 2.Child Developmental Behavior Center,The Third Affiliated Hospital,Sun Yat-Sen University,Guangzhou 510630,Guangdong Province,China; 3.Department of Nursing,The Third Affiliated Hospital,Sun Yat-Sen University,Guangzhou 510630)
关键词:
孤独症;  儿童;  父母;  家庭管理;  潜在剖面分析;  影响因素
Keywords:
autism spectrum disorder;  child;  parent;  family management;  latent profile analysis;  influencing factor
分类号:
R473.72
DOI:
10.3969/j.issn.2097-1826.2023.08.007
文献标志码:
A
摘要:
目的 识别并描述孤独症儿童家庭管理特征的潜在类别及其主要影响因素。方法 便利抽样法选取广州市某三级甲等医院儿童行为发育中心门诊就诊的328名孤独症儿童父母为研究对象,采用一般资料调查表及慢性病儿童家庭管理量表对其进行调查,使用潜在剖面分析方法识别孤独症儿童家庭管理特征的潜在类别,并采用多元Logistic回归分析不同类别的影响因素。结果 孤独症儿童的家庭管理特征可分为“管理有效型”(16.2%)、“基本适应型”(52.7%)及“管理困难型”(31.1%),确诊时间、居住地、经济水平、孤独症专业干预情况、父母健康和参与干预情况是家庭管理特征潜在类别的影响因素(均P<0.05)。结论 大部分孤独症儿童的家庭管理存在不同程度的困难,应关注确诊时间长、居住于农村、经济收入低家庭的孤独症儿童照护与干预情况,重视孤独症儿童父母的健康状况,为孤独症儿童接受专业干预提供支持。
Abstract:
Objective To identify and describe the potential categories of family management and the major influencing factors for children with autism spectrum disorder(ASD).Methods A total of 328 parents of children with ASD visited the Department of Outpatient of the Child Developmental Behavior Center of a level-3 grade-A hospital in Guangzhou were selected by the convenience sampling method as research objects and investigated by a general information questionnaire and Family Management Scale for Children with Chronic Diseases.Latent profile analysis was used to explore the potential categories of family management characteristics in children with ASD and multiple logistic regression analysis was used to analyze the influencing factors of the categories.Results The ASD family management patterns were categorized into “Effective management style”(16.2%),“Basic adaptive management style”(52.7%),and “Difficult management style”(31.1%).Time of final diagnosis,location of family residence,economic level,profession intervention in ASD,parental health condition,and parental participation in intervention were the influencing factors of the potential categories of family management characteristics(all P<0.05).Conclusions Various degrees of difficulties exist in family management for most children with ASD.Attention should be paid to the care and intervention of children ASD in the families with a long time of ASD final diagnosis,living in rural areas,and with low income.It is also necessary to pay attention to the health condition of parents and supporting children with ASD receiving professional intervention.

参考文献/References:

[1] LORD C,CHARMAN T,HAVDAHL A,et al.The Lancet Commission on the future of care and clinical research in autism[J].Lancet,2022,399(10321):271-334.
[2] KNAFL K,DEATRICK J A,GALLO A,et al.Assessment of the psychometric properties of the family management measure[J].J Pediatr Psychol,2011,36(5):494-505.
[3] SMITH S L,MCQUADE H B.Exploring the health of families with a child with autism[J/OL].[2022-11-30].https://journals.sagepub.com/doi/10.1177/1362361320986354.DOI:10.1177/1362361320986354.
[4] IM Y,JUNG S.Family functioning according to clusters of family management styles in Korean families of children with chronic atopic disease:a cross-sectional study[J/OL].[2022-11-30].https://www.sciencedirect.com/science/article/pii/S0020748920 301589?via%3Dihub.DOI:10.1016/j.ijnurstu.2020.103674.
[5] 李凌云,王盼盼,焦佳伟,等.养老机构护理员照顾失能老人获益体验的质性研究[J].解放军护理杂志,2022,39(6):1-4.
[6] WEISSHEIMER G,MAZZA V A,LIMA V F,et al.Relationship of family management with sociodemographic aspects and children's physical dependence in neurological disorders[J/OL].[2022-11-30].https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6248770/.DOI:10.1590/1518-8345.2494.3076.
[7] 张洁婷,焦璨,张敏强.潜在类别分析技术在心理学研究中的应用[J].心理科学进展,2010,18(12):1991-1998.
[8] ZHANG Y,WEI M,HAN H R,et al.Testing the applicability of the family management style framework to Chinese families[J].West J Nurs Res,2013,35(7):920-942.
[9] 周丹,蒋小平,陈澜,等.恶性肿瘤患儿家庭管理特征的潜在剖面分析[J].中华护理杂志,2022,57(20):2493-2501.
[10]TAYLOR S G.An interpretation of family within Orem's general theory of nursing[J].Nurs Sci Q,1989,2(3):131-137.
[11]SZLAMKA Z,TEKOLA B,HOEKSTRA R,et al.The role of advocacy and empowerment in shaping service development for families raising children with developmental disabilities[J].Health Expect,2022,25(4):1882-1891.
[12]SHENG N,MA J,DING W,et al.Family management affecting transition readiness and quality of life of Chinese children and young people with chronic diseases[J].J Child Health Care,2018,22(3):470-485.
[13]ESTES A,YODER P,MCEACHIN J,et al.The effect of early autism intervention on parental sense of efficacy in a randomized trial depends on the initial level of parent stress[J].Autism,2021,25(7):1924-1934.
[14]ESTES A,SWAIN D M,MACDUFFIE K E.The effects of early autism intervention on parents and family adaptive functioning[J/OL].[2022-11-30].https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6776235/.DOI:10.21037/pm.2019.05.05.
[15]王丽军,马珺.儿童自闭症康复乱象探析[J].医学与哲学,2018,39(7B):64-67.
[16]PASTOR-CEREZUELA G,FERNÁNDEZ-ANDRÉS M,PÉREZ-MOLINA D,et al.Parental stress and resilience in autism spectrum disorder and Down syndrome[J].J Fam Issues,2020,42(1):3-26.
[17]LEE M H,MIN A,PARK C,et al.How do sleep disturbances relate to daytime functions,care-related quality of life,and parenting interactions in mothers of children with autism spectrum disorder?[J].J Autism Dev Disord,2023,53(7):2764-2772.
[18]邹卓,刘芸,黄浩宇,等.儿童孤独症谱系障碍流行现状和家庭干预的研究及策略[J].中国全科医学,2020,23(8):900-907.

相似文献/References:

[1]宋厚梅,刘林,胡浩,等.变应性鼻炎儿童家庭管理水平现状及其影响因素分析[J].军事护理,2021,38(01):41.[doi:10.3969/j.issn.1008-9993.2021.01.011]
　SONG Houmei,LIU Lin,HU Hao,et al.Analysis on the Current Level of Family Management for the Children with Allergic Rhinitis and Its Influencing Factors[J].Nursing Journal Of Chinese People's Laberation Army,2021,38(08):41.[doi:10.3969/j.issn.1008-9993.2021.01.011]
[2]纪荣建,刘敏,王仁秀,等.仿人型机器人在儿童1型糖尿病管理中角色及应用的研究进展[J].军事护理,2021,38(04):77.[doi:10.3969/j.issn.1008-9993.2021.04.020]
[3]魏丽娟,刘丽英,张妙贤,等.克罗恩病儿童经口服全肠内营养体验的质性研究[J].军事护理,2021,38(05):59.[doi:10.3969/j.issn.1008-9993.2021.05.016]
　WEI Lijuan,LIU Liying,ZHANG Miaoxian,et al.Experience of Using Oral Exclusive Enteral Nutrition in Children with Crohn’s Disease: A Qualitative Study[J].Nursing Journal Of Chinese People's Laberation Army,2021,38(08):59.[doi:10.3969/j.issn.1008-9993.2021.05.016]
[4]王燕,吴利平,林琴,等.以家庭为中心的个案管理在1型糖尿病患儿中的应用研究[J].军事护理,2021,38(05):78.[doi:10.3969/j.issn.1008-9993.2021.05.021]
　WANG Yan,WU Liping,LIN Qin,et al.Effect of Family-centered Case Management for Children with Type 1 Diabetes Mellitus[J].Nursing Journal Of Chinese People's Laberation Army,2021,38(08):78.[doi:10.3969/j.issn.1008-9993.2021.05.021]
[5]姚蓉,雷丽梅,杨婷,等.结核病住院患儿家庭照顾者的照顾负担与焦虑现状及其相关性分析[J].军事护理,2021,38(10):32.[doi:10.3969/j.issn.1008-9993.2021.10.009]
　YAO Rong,LEI Limei,YANG Ting,et al.Correlation between Care Burden and Anxiety of Family Caregivers of Hospitalized Children with Tuberculosis[J].Nursing Journal Of Chinese People's Laberation Army,2021,38(08):32.[doi:10.3969/j.issn.1008-9993.2021.10.009]
[6]康冰瑶,谢红.虚拟现实疗法对减轻儿童静脉穿刺疼痛的Meta分析[J].军事护理,2022,39(10):76.[doi:10.3969/j.issn.2097-1826.2022.10.020]
　KANG Bingyao,XIE Hong.Virtual Reality Therapy in Relieving the Venipuncture Pain in Children: A Meta-analysis[J].Nursing Journal Of Chinese People's Laberation Army,2022,39(08):76.[doi:10.3969/j.issn.2097-1826.2022.10.020]
[7]诸葛炜,许莉莉,孟盈彤,等.重症监护病房儿童氧合状态与谵妄发作的相关性研究[J].军事护理,2023,40(04):15.[doi:10.3969/j.issn.2097-1826.2023.04.004]
　ZHUGE Wei,XU Lili,MENG Yingtong,et al.Correlation Between Oxygenation State and Delirium Among Pediatric Patients in Intensive Care Unit[J].Nursing Journal Of Chinese People's Laberation Army,2023,40(08):15.[doi:10.3969/j.issn.2097-1826.2023.04.004]
[8]卫平莲,刘安诺.虚拟现实技术联合小丑照护在门诊伤口换药患儿中的应用[J].军事护理,2023,40(04):28.[doi:10.3969/j.issn.2097-1826.2023.04.007]
　WEI Pinglian,LIU Annuo.Application of Virtual Reality Technology Combined with Clown Care in Pediatric Patients Undergoing Wound Dressing Change in Outpatient Department[J].Nursing Journal Of Chinese People's Laberation Army,2023,40(08):28.[doi:10.3969/j.issn.2097-1826.2023.04.007]
[9]房培,谭兰惠,李佳,等.癌症患儿自我报告结局评估工具的研究进展[J].军事护理,2023,40(06):73.[doi:10.3969/j.issn.2097-1826.2023.06.018]
[10]李阳,熊桃,郑予希,等.儿童脑卒中生活质量评估工具的范围综述[J].军事护理,2023,40(07):98.[doi:10.3969/j.issn.2097-1826.2023.07.023]
　LI Yang,XIONG Tao,ZHENG Yuxi,et al.Assessment Tools for the Quality of Life among Children with Stroke:A Scoping Review[J].Nursing Journal Of Chinese People's Laberation Army,2023,40(08):98.[doi:10.3969/j.issn.2097-1826.2023.07.023]
[11]吴燕红,董超群,岑伊贝妮,等.孤独症儿童家庭复原力现状及其影响因素的研究[J].军事护理,2022,39(08):34.[doi:10.3969/j.issn.2097-1826.2022.08.009]
　WU Yanhong,DONG Chaoqun,CEN Yibeini,et al.Status Quo of Family Resilience of Families with Autism Spectrum Disorder Children and Its Influential Factors[J].Nursing Journal Of Chinese People's Laberation Army,2022,39(08):34.[doi:10.3969/j.issn.2097-1826.2022.08.009]

备注/Memo

备注/Memo:
【 收稿日期 】 2022-12-11 【 修回日期 】 2023-06-25
【 作者简介 】 刘劭菲,硕士在读,护士,电话:020-87334850
【 通信作者 】 张利峰,电话:020-87334850
更新日期/Last Update: 2023-08-15