[1]成磊,连逸飞,翟晓文,等.专业照护者感知的儿童安宁疗护实践影响因素的质性研究[J].军事护理,2023,40(04):11-14.[doi:10.3969/j.issn.2097-1826.2023.04.003]
　CHENG Lei,LIAN Yifei,ZHAI Xiaowen,et al.Influencing Factors of Pediatric Hospice Care Practices Perceived by Professional Caregivers:A Qualitative Study[J].Nursing Journal Of Chinese People's Laberation Army,2023,40(04):11-14.[doi:10.3969/j.issn.2097-1826.2023.04.003]
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专业照护者感知的儿童安宁疗护实践影响因素的质性研究
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《军事护理》[ISSN:2097-1826/CN:31-3186/R]

卷:
40
期数:
2023年04期
页码:
11-14
栏目:
儿童护理专栏
出版日期:
2023-04-15

文章信息/Info

Title:
Influencing Factors of Pediatric Hospice Care Practices Perceived by Professional Caregivers:A Qualitative Study
文章编号:
2097-1826(2023)04-0011-05
作者:
成磊1; 连逸飞1; 翟晓文2; 刘薇群3
(1.复旦大学 护理学院,上海 200032; 2.复旦大学附属儿科医院 血液肿瘤科,上海 201102; 3.上海市浦东新区周浦医院 护理部,上海 201318)
Author(s):
CHENG Lei1; LIAN Yifei1; ZHAI Xiaowen2; LIU Weiqun3
(1.School of Nursing,Fudan University,Shanghai 200032,China; 2.Department of Hematology and Oncology,Pediatric Hospital of Fudan University,Shanghai 201102,China; 3.Department of Nursing,Pudong Zhoupu Hospital,Shanghai 201318,China)
关键词:
儿童;  安宁疗护;  专业照护者;  质性研究
Keywords:
children;  hospice care;  professional caregiver;  qualitative study
分类号:
R473.72; R48
DOI:
10.3969/j.issn.2097-1826.2023.04.003
文献标志码:
A
摘要:
目的 深入了解专业照护者感知的儿童安宁疗护实践影响因素,为提升安宁疗护服务质量提供参考依据。方法 2021年11月至2022年3月,目的抽样法选取上海市2所儿童专科医院和4所社区医院的3名医生、15名护士、3名社工为研究对象,采用现象学研究方法,对其进行深度访谈,对访谈资料进行转录、编码、分析、提炼主题。结果 专业照顾者感知的儿童安宁疗护实践的影响因素分别来自微观系统(患儿的诊疗经历、对疾病的认知、身心需求)、中观系统(家庭成员对安宁疗护的认识、对安宁疗护信息的获取、情绪状态,专业照护者开展安宁疗护的意愿、服务能力,医疗机构的服务模式、资源配置)和宏观系统(社会文化、政策机制)3个层面。结论 儿童安宁疗护实践面临多重影响,需要普及安宁疗护理念,增强社会各层面对其关注度和参与度,提升专业照顾者的服务能力,加强医院、社区、家庭安宁服务的连续性,开发适合国内临床情景的个性化安宁疗护服务,提高患儿和家庭的生活质量。
Abstract:
Objective To explore the influencing factors of pediatric hospice care practices perceived by professional caregivers,and to provide reference for improving the quality of hospice care service.Methods From November 2021 to March 2022,3 doctors,15 nurses and 3 social workers from 2 children's specialized hospitals and 4 community hospitals in Shanghai were interviewed in depth by phenomenological research methods. Results The influencing factors of pediatric hospice care practice perceived by professional caregivers came from three levels,including the micro system(diagnosis and treatment experience,disease cognition,physical and mental needs of children),the meso system(family members' understanding of hospice care,access to hospice care information,emotional state,professional caregivers' willingness and service ability to carry out hospice care,service mode and resource allocation of medical institutions)and the macro system(social culture,and policy mechanism).Conclusions Children's hospice care practice is faced with multiple influences.It is necessary to popularize the concept of hospice care,attract the attention and participation of all levels of society,improve the service ability of professional caregivers,strengthen the continuity of pediatric services in hospitals,communities and families,develop personalized hospice care services suitable for domestic clinical situations,and improve the quality of life of children and families.

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备注/Memo

备注/Memo:
【 收稿日期 】 2022-08-20 【 修回日期 】 2023-02-16
【 基金项目 】 美国中华医学基金会OC项目(#27-421); 泰康溢彩公卫基金项目(XJJ-YCGW-2021009))
【 作者简介 】 成磊,博士,讲师,电话:021-64161784
更新日期/Last Update: 2023-04-15