参考文献/References:
[1] SCHNAKERS C,MONTI M M.Disorders of consciousness after severe brain injury:the rapeutic options[J].Curr Opin Neurol,2017,30(6):573-579.
[2] CAI X,ROBINSON J,MUEHLSCHLEGEL S,et al.Patient preferences and surrogate decision making in neuroscience intensive care units[J].Neurocrit Care,2015,23(1):131-141.
[3] COURTRIGHT K R,BENOIT D D,CURTIS J R.Focus on ethics and palliative care in the intensive care unit[J].Intensive Care Med,2019,45(6):885-886.
[4] COMER A R,GAFFNEY M,STONE C L,et al.Physician understanding and application of surrogate decision-making laws in clinical practice[J].AJOB Empir Bioeth,2017,8(3):198-204.
[5] MUEHLSCHLEGEL S,SHUTTER L,COL N,et al.Decision aids and shared decision-making in neurocritical care:an unmet need in our neuro ICUs[J].Neurocrit Care,2015,23(1):127-130.
[6] SU Y,YUKI M,HIRAYAMA K.The experiences and perspectives of family surrogate decision-makers:a systematic review of qualitative studies[J].Patient Educ Couns,2020,103(6):1070-1081.
[7] LAUTRETTE A,PEIGNE V,WATTS J,et al.Surrogate decision makers for incompetent ICU patients:a European perspective[J].Curr Opin Crit Care,2008,14(6):714-719.
[8] 中国人民代表大会.中华人民共和国民法典[EB/OL].[2021-04-19].http://www.npc.gov.cn/npc/c30834/202006/75ba6483b8344591abd 07917e1d25cc8.shtml.
[9] 燕娟,王洪奇.试论代理同意的有效性[J].中国卫生事业管理,2017,34(7):524-527.
[10]马红梅,罗捷.天津市ICU护士对预先指示知识和态度的调查研究[J].中华护理杂志,2017,52(10):1221-1225.
[11]WENDLER D.The theory and practice of surrogate decision-making[J].Hastings Cent Rep,2017,47(1):29-31.
[12]GRAHAM M.Precedent autonomy and surrogate decisionmaking after severe brain injury[J].Camb Q Healthc Ethics,2020,29(4):511-526.
[13]GRIFFITH R.Best interest meetings[J].Br J Community Nurs,2018,23(5):252-254.
[14]陈化,徐喜荣.论临床代理决策中的“患者最佳利益原则”[J].医学与哲学,2013,34(6B):5-8.
[15]NYHOLM L,KOSKINEN C A.Understanding and safeguarding patient dignity in intensive care[J].Nurs Ethics,2017,24(4):408-418.
[16]韩跃红.“尊严”为生命伦理学“立心”[J].道德与文明,2013(6):118-124.
[17]KIRCHHOFFER D G.Dignity,autonomy,and allocation of scarce medical resources during COVID-19[J].J Bioeth Inq,2020,17(4):691-696.
[18]张新庆,王云岭,韩跃红,等.“生命尊严”系列讨论之三:终末期患者的尊严[J].中国医学伦理学,2018,31(1):28-34,49.
[19]CURTIS J R,WHITE D B.Practical guidance for evidence-based ICU family conferences[J].Chest,2008,134(4):835-843.
[20]BURNS K E A,PRATS C J,MAIONE M,et al.The experience of surrogate decision makers on being approached for consent for patient participation in research.A multicenter study[J].Ann Am Thorac Soc,2017,14(2):238-245.
[21]NELSON J E,HANSON L C,KELLER K L,et al.The voice of surrogate decision-makers.Family responses to prognostic information in chronic critical illness[J].Am J Respir Crit Care Med.2017,196(7):864-872.
[22]HICKMAN R L J R,PIGNATIELLO G A,TAHIR S.Evaluation of the decisional fatigue scale among surrogate decision makers of the critically ill[J].West J Nurs Res,2018,40(2):191-208.
[23]BIBAS L,PERETZ-LAROCHELLE M,ADHIKARI N K,et al.Association of surrogate decision-making interventions for critically ill adults with patient,family,and resource use outcomes:a systematic review and Meta-analysis[J/OL].[2021-08-01].https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6646989/.Doi:10.1001/jamanetworkopen.2019.7229.
[24]林琪,董芳辉,曾莉,等.神经重症患者家属创伤后成长的影响因素及路径分析[J].中华护理杂志,2021,56(6):836-842.
[25]KON A A,DAVIDSON J E,MORRISON W,et al.Shared decision making in ICUs:an American college of critical care medicine and American thoracic society policy statement[J].Crit Care Med,2016,44(1):188-201.
[26]DANEAU S,BOURBONNAIS A,LEGAULT A.Surrogates' end-of-life decision-making process in nursing homes for residents with a neurocognitive disorder:an integrative review[J/OL].[2021-08-01].https://pubmed.ncbi.nlm.nih.gov/3132 2688/.DOI:10.1001/jamanetworkopen.2019.7229.
[27]WHITE D B,ENGELBERG R A,WENRICH M D,et al.The language of prognostication in intensive care units[J].Med Decis Making,2010,30(1):76-83.
[28]LONG B,CLARK L,COOK P.Surrogate decision making for patients with severe traumatic brain injury[J].J Trauma Nurs,2011,18(4):204-212.
[29]EVANS L R,BOYD E A,MALVAR G,et al.Surrogate decision-makers' perspectives on discussing prognosis in the face of uncertainty[J].Am J Respir Crit Care Med,2009,179(1):48-53.
[30]SCHEUNEMANN L P,ERNECOFF N C,BUDDADHUMARUK P,et al.Clinician-family communication about patients' values and preferences in intensive care units[J].JAMA Intern Med,2019,179(5):676-684.
[31]刘涛.儒家伦理视域下医疗决策中利益冲突之化解[J].中国医学伦理学,2018,31(8):1017-1022.
[32]孙思涵.儒家家庭主义视角下病危患者的生死抉择——由“琼瑶事件”引发的思考[J].中国医学伦理学,2017,30(9):1114-1117.
[33]马小川,王建光.ICU治疗领域的伦理问题辨析[J].医学与哲学(A),2017,38(5):17-20,30.
[34]LI L,NELSON J E,HANSON L C,et al.How surrogate decision-makers for patients with chronic critical illness perceive and carry out their role[J].Crit Care Med,2018,46(5):699-704.
[35]SCHEUNEMANN L P,MCDEVITT M,CARSON S S,et al.Randomized,controlled trials of interventions to improve communication in intensive care:a systematic review[J].Chest,2011,139(3):543-554.
[36]PISCITELLO G M,PARHAM W M,HUBER M T,et al.The timing of family meetings in the medical intensive care unit[J].Am J Hosp Palliat Care,2019,36(12):1049-1056.
[37]于琳,杨淑,郭萍萍,等.决策辅助工具在乳腺癌筛查中的应用现状与展望[J].中国护理管理,2020,20(10):1591-1595.
[38]COX C E,WHITE D B,ABERNETHY A P.A universal decision support system.Addressing the decision-making needs of patients,families,and clinicians in the setting of critical illness[J].Am J Respir Crit Care Med,2014,190(4):366-373.
[39]COX C E,WHITE D B,HOUGH C L,et al.Effects of a personalized web-based decision aid for surrogate decision makers of patients with prolonged mechanical ventilation:a randomized clinical trial[J].Ann Intern Med,2019,170(5):285-297.
[40]李玉.早期原发性肝癌患者治疗决策辅助方案的构建与应用研究[D].上海:第二军医大学,2017.
[41]MUEHLSCHLEGEL S,SHUTTER L,COL N,et al.Decision aids and shared decision-making in neurocritical care:an unmet need in our neuroICUs[J].Neurocrit Care,2015,23(1):127-130.
[42]FITZPATRICK J J.Narrative nursing:applications in practice,education,and research[J].Appl Nurs Res,2017,37:67.
[43]孙遥.预先医疗指示制度研究[D].济南:山东大学,2017.
[44]HICKMAN R L,DALY B J,CLOCHESY J M,et al.Leveraging the lived experience of surrogate decision makers of the seriously ill to develop a decision support intervention[J].Appl Nurs Res,2016,30:67-69.
[45]KANG L,LIU X H,ZHANG J,et al.Attitudes toward advance directives among patients and their family members in China[J].J Am Med Dir Assoc,2017,18(9):808.e7-808.e11.
相似文献/References:
[1]余倩,杨富,方芳.危重症患者疼痛观察工具的研究进展[J].军事护理,2021,38(08):72.[doi:10.3969/j.issn.1008-9993.2021.08.019]
[2]刘雪冰,刘东玲,朱婷婷,等.国外代理决策相关研究的文献计量学分析.[J].军事护理,2021,38(10):40.[doi:10.3969/j.issn.1008-9993.2021.10.011]
LIU Xuebing,LIU Dongling,ZHU Tingting,et al.Bibliometric Analysis of Research in Surrogate Decision-making Abroad[J].Nursing Journal Of Chinese People's Laberation Army,2021,38(04):40.[doi:10.3969/j.issn.1008-9993.2021.10.011]
[3]马航霞,杨梦,林韦彤,等.成年人代理决策在临床应用中的研究进展[J].军事护理,2021,38(10):61.[doi:10.3969/j.issn.1008-9993.2021.10.016]
[4]旷紫霞,陈玲,赖国鑫,等.重症监护室护理不良事件中第二受害者支持现状及影响因素研究[J].军事护理,2021,38(12):13.[doi:10.3969/j.issn.1008-9993.2021.12.004]
KUANG Zixia,CHEN Ling,LAI Guoxin,et al.Supporting Status and Influencing Factors of the Second Victim in Intensive Care Unit Nursing Adverse Events[J].Nursing Journal Of Chinese People's Laberation Army,2021,38(04):13.[doi:10.3969/j.issn.1008-9993.2021.12.004]
[5]李雪梅,王欣琦,徐励,等.脑肿瘤术后ICU患者谵妄亚型的危险因素分析[J].军事护理,2022,39(05):13.[doi:10.3969/j.issn.1008-9993.2022.05.004]
LI Xuemei,WANG Xinqi,XU Li,et al.Analysis the Risk Factors of Delirium Subtypes in ICU Patients after Brain Tumor Surgery[J].Nursing Journal Of Chinese People's Laberation Army,2022,39(04):13.[doi:10.3969/j.issn.1008-9993.2022.05.004]
[6]李霞,万兴丽,胡艳玲.新生儿重症监护室住院早产儿经口奶瓶喂养评估量表的研究进展[J].军事护理,2022,39(09):70.[doi:10.3969/j.issn.1008-9993.2022.09.018]
[7]余琪,陈香萍,张立秀,等.作业治疗在重症监护室患者康复中的应用进展[J].军事护理,2023,40(11):23.[doi:10.3969/j.issn.2097-1826.2023.11.006]