参考文献/References:
[1] HAMMAMI M M,ABUHDEEB K,BALKHI A A.Importance hierarchy of surrogate medical decision making determinants:a q-methodology study in Middle Eastern and East Asian men[J].Med Decis Making,2020,40(8):1020-1033.[2] SULMASY D P, HUGHES M T,YENOKYAN G,et al.The trial of ascertaining individual preferences for loved ones' role in end-of-life decisions(TAILORED)study:a randomized controlled trial to improve surrogate decision making[J].J Pain Symptom Manage,2017,54(4):455-465.[3] HICKMAN R L J,DALY B J,CLOCHESY J M,et al.Leveraging the lived experience of surrogate decision makers of the seriously ill to develop a decision support intervention[J].Appl Nurs Res,2016(30):67-69.[4] GEROS-WILLFOND K N,IVY S S,MONTZ K,et al.Religion and spirituality in surrogate decision making for hospitalized older adults[J].J Relig Health,2016,55(3):765-777.[5] SHEPHERD V,HOOD K,SHEEHAN M,et al.‘It's a tough decision':a qualitative study of proxy decision-making for research involving adults who lack capacity to consent in UK[J].Age Ageing,2019,48(6):903-909.[6] 吴琼,尹永田,陈莉军,等.患者替代决策评估工具及影响因素研究现状[J].中国护理管理,2018,18(6):858-861.[7] BIBAS L,PERETZ-LAROCHELLE M,ADHIKARI N K,et al.Association of surrogate decision-making interventions for critically ill adults with patient,family, and resource use outcomes:a systematic review and Meta-analysis[J/OL].[2021-05-21].https://jamanetwork.com/journals/jamanetworkopen/fullarticle/2738345.[8] LIGHTFOOT N,KIRKOVA Y,FOX S,et al.Overcoming challenges to surrogate decision making for young adults at the end of life[J].Am J Hosp Palliat Care,2021,38(6):596-600.[9] KIM H,DEATRICK J A,ULRICH C M.Ethical frameworks for surrogates' end-of-life planning experiences[J].Nurs Ethics,2017,24(1):46-69.[10]SPALDING R,STROUGH J,EDELSTEIN B.What would people think?Perceived social norms,willingness to serve as a surrogate,and end-of-life treatment decisions[J].Palliat Support Care,2021,19(1):46-54.[11]TSUDA S,NAKAMURA M, MIYACHI J,et al.Decisional conflict in home medical care in a family-oriented society:family members' perspectives on surrogate decision making from a multicenter cohort study[J].J Palliat Med,2019,22(7):814-822.[12]LILLEY E J,MORRIS M A,SADOVNIKOFF N,et al.“Taking over somebody's life”:experiences of surrogate decision-makers in the surgical intensive care unit[J].Surgery,2017,162(2):453-460.[13]SU Y,YUKI M,HIRAYAMA K.The experiences and perspectives of family surrogate decision-makers:a systematic review of qualitative studies[J].Patient Educ Couns,2020,103(6):1070-1081.[14]ANDERSSON A M,JOHANSSON K A.Substituted decision making and the dispositional choice account[J].J Med Ethics,2018,44(10):703-709.[15]MOSS K O,GUERIN R,DWYER O M,et al.On best interests:a case for clinical ethics consultation[J].J Hosp Palliat Nurs,2020,22(1):5-11.[16]WILKINS J M.Narrative interest standard:a novel approach to surrogate decision-making for people with dementia[J].Gerontologist,2018,58(6):1016-1020.[17]GEDDIS-REGAN A,ERRINGTON L,ABLEY C,et al.Enhancing shared and surrogate decision making for people living with dementia:a systematic review of the effectiveness of interventions[J].Health Expect,2021,24(1):19-32.[18]FETHERSTONHAUGH D,MCAULIFFE L,BAUER M,et al.Decision-making on behalf of people living with dementia:how do surrogate decision-makers decide?[J].J Med Ethics,2017,43(1):35-40.[19]KWON J H,BAEK S K,KIM B S,et al.Surrogate decision making of chemotherapy consent:do we really provide informed consent of chemotherapy for patients?[J].Korean J Intern Med,2019,34(3):626-633.[20]DIONNE-ODOM J N,EJEM D,AZUERO A,et al.Factors associated with family caregivers' confidence in future surrogate decision making for persons with cancer[J].J Palliat Med,2018,21(12):1705-1712.[21]SAHGAL S,YANDE A,THOMPSON B B,et al.Surrogate satisfaction with decision making after intracerebral hemorrhage[J].Neurocrit Care,2021,34(1):193-200.[22]ZAHURANEC D B,ANSPACH R R,RONEY M E,et al.Surrogate decision makers' perspectives on family members' prognosis after intracerebral hemorrhage[J].J Palliat Med,2018,21(7):956-962.[23]CHEN E P,ARSLANIAN-ENGOREN C,NEWHOUSE W,et al.Development and usability testing of understanding stroke,a tailored life-sustaining treatment decision support tool for stroke surrogate decision makers[J/OL].[2021-05-31].https://bmcpalliatcare.biomedcentral.com/articles/10.1186/s12904-020-00617-x.[24]SUN W N,HSU H T,KO N Y,et al.Decision-making processes in surrogates of cancer patients in a Taiwan intensive care unit[J/OL].[2021-05-31].https://www.mdpi.com/1660-4601/17/12/4443.[25]关玉珠,孟萌,李乐之.危重患者决策代理人心理体验及干预的研究进展[J].护理学杂志,2019,34(23):99-102.[26]WITTICH A R,WILLIAMS B R,BAILEY F A,et al.“He got his last wishes”:ways of knowing a loved one's end-of-life preferences and whether those preferences were honored[J].J Clin Ethics,2013,24(2):113-124.[27]TANAKA M,OHNISHI K,ENZO A,et al.Grounds for surrogate decision-making in Japanese clinical practice:a qualitative survey[J/OL].[2021-05-31].https://bmcmedethics.biomedcentral.com/articles/10.1186/s12910-020-00573-4.[28]FRITSCH J,PETRONIO S,HELFT P R,et al.Making decisions for hospitalized older adults:ethical factors considered by family surrogates[J].J Clin Ethics,2013,24(2):125-134.[29]BATTEUX E,FERGUSON E,TUNNEY R J.On the likelihood of surrogates conforming to the substituted judgment standard when making end-of-life decisions for their partner[J].Med Decis Making,2019,39(6):651-660.[30]VIG E K,STARKS H,TAYLOR J S,et al.Surviving surrogate decision-making:what helps and hampers the experience of making medical decisions for others[J].J Gen Intern Med,2007,22(9):1274-1279.[31]BALBONI T A,BALBONI M,ENZINGER A C,et al.Provision of spiritual support to patients with advanced cancer by religious communities and associations with medical care at the end of life[J].JAMA Intern Med,2013,173(12):1109-1117.[32]PHELPS A C,MACIEJEWSKI P K,NILSSON M,et al.Religious coping and use of intensive life-prolonging care near death in patients with advanced cancer[J].JAMA,2009,301(11):1140-1147.[33]SPALDING R.Accuracy in surrogate end-of-life medical decision-making:a critical review[J].Appl Psychol Health Well Being,2021,13(1):3-33.[34]赵文娟,黄喆.终末期患者家庭会议实施过程的研究进展[J].护理学杂志,2018,33(19):109-112.[35]MOSS K O,DOUGLAS S L,BAUM E,et al.Family surrogate decision-making in chronic critical illness:a qualitative analysis[J].Crit Care Nurse,2019,39(3):e18-e26.[36]DANEAU S,BOURBONNAIS A,LEGAULT A.Surrogates' end-of-life decision-making process in nursing homes for residents with a neurocognitive disorder:an integrative review[J/OL].[2021-05-31]. https://onlinelibrary.wiley.com/doi/10.1111/opn.12274.[37]PIGNATIELLO G A,HICKMAN R L J.Correlates of cognitive load in surrogate decision makers of the critically Ⅲ[J].West J Nurs Res,2019,41(5):650-666.(本文编辑:郁晓路)