[1]李阳,熊桃,郑予希,等.儿童脑卒中生活质量评估工具的范围综述[J].军事护理,2023,40(07):98-102.[doi:10.3969/j.issn.2097-1826.2023.07.023]
　LI Yang,XIONG Tao,ZHENG Yuxi,et al.Assessment Tools for the Quality of Life among Children with Stroke:A Scoping Review[J].Nursing Journal Of Chinese People's Laberation Army,2023,40(07):98-102.[doi:10.3969/j.issn.2097-1826.2023.07.023]
点击复制

儿童脑卒中生活质量评估工具的范围综述
分享到：

《军事护理》[ISSN:2097-1826/CN:31-3186/R]

卷:
40
期数:
2023年07期
页码:
98-102
栏目:
循证护理
出版日期:
2023-07-15

文章信息/Info

Title:
Assessment Tools for the Quality of Life among Children with Stroke:A Scoping Review
文章编号:
2097-1826(2023)07-0098-05
作者:
李阳1; 熊桃1; 郑予希1; 李奉玲2; 蒋瑶1; 魏雪梅3; 崔丽君3
(1.川北医学院 护理学院,四川 南充 637100; 2.川北医学院附属医院 产科,四川 南充 637000; 3.川北医学院附属医院 护理部)
Author(s):
LI Yang1; XIONG Tao1; ZHENG Yuxi1; LI Fengling2; JIANG Yao1; WEI Xuemei3; CUI Lijun3
(1.School of Nursing,North Sichuan Medical College,Nanchong 637100,Sichuan Province,China; 2.Department of Obstetrics,Affiliated Hospital of North Sichuan Medical College,Nanchong 637000,Sichuan Province,China; 3.Department of Nursing,Affiliated Hospital of North Sichuan Medical College)
关键词:
脑卒中;  儿童;  生活质量;  评估工具;  范围综述
Keywords:
stroke;  children;  quality of life;  assessment tool;  scoping review
分类号:
R473.72
DOI:
10.3969/j.issn.2097-1826.2023.07.023
文献标志码:
A
摘要:
目的 分析国内外儿童脑卒中生活质量评估工具的特征、维度内容及划分依据,为筛选或制订适用于我国儿童脑卒中生活质量的评估工具提供依据。方法 采用范围综述研究方法,检索PubMed、Web of Science、Embase、Cochrane Library、中国生物医学文献数据库、中国知网、万方数据库、维普等多个数据库,筛选符合纳入标准的文献,提取文献中筛查工具的具体信息(工具名称、开发国家/机构、评估年龄、评分方式、维度数、条目数、维度名称及信度等)。结果 最终纳入符合标准的文献23篇,包含9个卒中儿童生活质量评估工具。结论 卒中儿童生活质量评估工具种类较多、总体信效度水平较高,但多为普适性工具,相关人员需根据工具特点综合选择评估工具。
Abstract:
Objective To analyze the characteristics,dimensions,contents and basis of the domestic and foreign assessment tools for the quality of life among children with stroke,so as to provide references for screening or developing the appropriate assessment tools for the quality of life among children with stroke in China.Methods A scoping review was conducted.The databases of PubMed,Web of Science,Embase,Cochrane Library,CBM,CNKI,Wanfang,and Vip were searched to screen the articles which met the inclusion criteria.The specific information of the assessment tools,including name,development country/institution,age to be assessed,scoring method,number of dimensions,number of items,name of dimensions,reliability,etc.were extracted from the articles.Results Twenty-three articles which met the criteria were involved,including nine assessment tools for the quality of life among children with stroke.Conclusions There are diverse assessment tools for the quality of life among children with stroke,of which the overall reliability and validity are high.Most of the tools are general tools,so it is necessary to select assessment tools according to their comprehensive characteristics.

参考文献/References:

[1] FERRIERO D M,FULLERTON H J,BERNARD T J,et al.Management of stroke in neonates and children:a scientific statement from the American Heart Association/American Stroke Association[J].Stroke,2019,50(3):e51-e96.
[2] 翁艳翎,陈晓侠,宋文静,等.甲状腺癌术后病人生活质量的研究进展[J].护理研究,2022,36(9):1616-1619.
[3] KAPLAN R M,RIES A L.Quality of life:concept and definition[J].COPD:J Chron Obstruct Pulmon Dis,2007,4(3):263-271.
[4] SPORNS P B,FULLERTON H J,LEE S,et al.Childhood stroke[J].Nat Rev Dis Primers,2022,8(1):1-27.
[5] ARKSEY H,O'MALLEY L.Scoping studies:towards a methodological framework[J].Int J Soc Res Methodol,2005,8(1):19-32.
[6] 仇如霞,顾艳荭.范围综述报告规范(PRISMA-ScR)的解读[J].中国循证医学杂志,2022,22(6):722-730.
[7] OW N,APPAU A,MATOUT M,et al.What is QOL in children and adolescents with physical disabilities?A thematic synthesis of pediatric QOL literature [J].Qual Life Res,2021,30(5):1233-1248.
[8] FIUME A,DEVEBER G,JANG S H,et al.Development and validation of the pediatric stroke quality of life measure[J].Dev Med Child Neurol,2018,60(6):587-595.
[9] CNOSSEN M H,AARSEN F K,AKKER S L,et al.Paediatric arterial ischaemic stroke:functional outcome and risk factors[J].Dev Med Child Neurol,2010,52(4):394-399.
[10]VOGELS T,VERRIPS G H,VERLOOVE-VANHORICK S P,et al.Measuring health-related quality of life in children:the development of the TACQOL parent form[J].Qual Life Res,1998(7):457-465.
[11]FEKKES M,THEUNISSEN N C,BRUGMAN E,et al.Development and psychometric evaluation of the TAPQOL:a health-related quality of life instrument for 1-5-year-old children[J].Qual Life Res,2000,9(8):961-972.
[12]CHRISTERSON S,STRÖMBERG B.Stroke in Swedish children II:long-term outcome[J].Acta Paediatr,2010,99(11):1650-1656.
[13]NG J Y,LANDGRAF J M,CHIU C S,et al.Preliminary evidence on the measurement properties of the Chinese version of the child health questionnaire,parent form(CHQ-PF50)and child form(CHQ-CF87)[J].Qual Life Res,2005,14(7):1775-1781.
[14]LO W D,HAJEK C,PAPPA C,et al.Outcomes in children with hemorrhagic stroke[J].JAMA Neurol,2013,70(1):66-71.
[15]GHOTRA S K,JOHNSON J A,QIU W,et al.Health-related quality of life and its determinants in paediatric arterial ischaemic stroke survivors[J].Arch Dis Child,2018,103(10):930-936.
[16]GHOTRA S K,JOHNSON J A,QIU W,et al.Age at stroke onset influences the clinical outcome and health-related quality of life in pediatric ischemic stroke survivors[J].Dev Med Child Neurol,2015,57(11):1027-1034.
[17] FRIEFELD S,YEBOAH O,JONES J E,et al.Health-related quality of life and its relationship to neurological outcome in child survivors of stroke[J].CNS Spectr,2004,9(6):465-475.
[18]O'KEEFFE F,GANESAN V,KING J,et al.Quality-of-life and psychosocial outcome following childhood arterial ischaemic stroke[J].Brain Inj,2012,26(9):1072-1083.
[19]BULDER M M,HELLMANN P M,VAN NIEUWENHUIZEN O,et al.Measuring outcome after arterial ischemic stroke in childhood with two different instruments[J].Cerebrovasc Dis,2011,32(5):463-470.
[20]VARNI J W,SEID M,KURTIN P S,et al.PedsQL 4.0:reliability and validity of the pediatric quality of life inventory version 4.0 generic core scales in healthy and patient populations[J].Med Care,2001,39(8):800-812.
[21]LAI J S,NOWINSKI C,VICTORSON D,et al.Quality-of-life measures in children with neurological conditions:pediatric Neuro-QOL[J].Neurorehabil Neural Repair,2012,26(1):36-47.
[22]CASPAR-TEUSCHER M,STUDER M,REGÉNYI M,et al.Health related quality of life and manual ability 5 years after neonatal ischemic stroke[J].Eur J Paediatr Neurol,2019,23(5):716-722.
[23]EVERTS R,PAVLOVIC J,KAUFMANN F,et al.Cognitive functioning,behavior,and quality of life after stroke in childhood[J].Child Neuropsychol,2008,14(4):323-338.
[24]RAVENS-SIEBERER U,GOSCH A,RAJMIL L,et al.The KIDSCREEN-52 quality of life measure for children and adolescents:psychometric results from a cross-cultural survey in 13 European countries[J].Value Health,2008,11(4):645-658.
[25]KORNFELD S,STUDER M,WINKELBEINER S,et al.Quality of life after paediatric ischaemic stroke[J].Dev Med Child Neurol,2017,59(1):45-51.
[26]NEUNER B,VON MACKENSEN S,KRÜMPEL A,et al.Health-related quality of life in children and adolescents with stroke,self-reports,and parent/proxies reports:cross-sectional investigation[J].Ann Neurol,2011,70(1):70-78.
[27]NEUNER B,VON MACKENSEN S,HOLZHAUER S,et al.Health-related quality of life in children and adolescents with hereditary bleeding disorders and in children and adolescents with stroke:cross-sectional comparison to siblings and peers[J].Biomed Res Int,2016:1579428.DOI:10.1155/2016/1579428.
[28]RAVENS-SIEBERER U,BULLINGER M.Assessing health-related quality of life in chronically ill children with the German KINDL:first psychometric and content analytical results[J].Qual Life Res,1998,7(5):399-407.
[29]DARTEYRE S,RENAUD C,VUILLEROT C,et al.Quality of life and functional outcome in early school-aged children after neonatal stroke:a prospective cohort study[J].Eur J Paediatr Neurol,2014,18(3):347-353.
[30]DEVI N,MADAAN P,SAHU J K,et al.Translation,adaptation,and validation of hindi version of quality of life of the infant(QUALIN)for use in infants and toddlers[J].Indian J Pediat,2023,90(2):124-130.
[31]仇如霞,顾艳荭.范围综述报告规范(PRISMA-ScR)的解读[J].中国循证医学杂志,2022,22(6):722-730.
[32]陈志慧,王芳,丁洁.慢性肾脏病患儿生活质量研究进展[J].中华实用儿科临床杂志,2019(17):1355-1357.
[33]CREMEENS J,EISER C,BLADES M.Factors influencing agreement between child self-report and parent proxy-reports on the pediatric quality of life inventory 4.0(PedsQL)generic core scales[J].Health Qual Life Outcomes,2006,4(1):1-8.

相似文献/References:

[1]宋厚梅,刘林,胡浩,等.变应性鼻炎儿童家庭管理水平现状及其影响因素分析[J].军事护理,2021,38(01):41.[doi:10.3969/j.issn.1008-9993.2021.01.011]
　SONG Houmei,LIU Lin,HU Hao,et al.Analysis on the Current Level of Family Management for the Children with Allergic Rhinitis and Its Influencing Factors[J].Nursing Journal Of Chinese People's Laberation Army,2021,38(07):41.[doi:10.3969/j.issn.1008-9993.2021.01.011]
[2]胡欢欢,郑静,李冬梅,等.卒中健康管理门诊的建立与实践效果研究[J].军事护理,2021,38(02):48.[doi:10.3969/j.issn.1008-9993.2021.02.013]
　HU Huanhuan,ZHENG Jing,LI Dongmei,et al.Establishment and Effect of Stroke Health Management Clinic[J].Nursing Journal Of Chinese People's Laberation Army,2021,38(07):48.[doi:10.3969/j.issn.1008-9993.2021.02.013]
[3]朱金扬,李颖,汪凤兰.脑卒中患者心理痛苦对创伤后成长的影响:反刍性沉思的中介作用[J].军事护理,2021,38(03):18.[doi:10.3969/j.issn.1008-9993.2021.03.005]
　ZHU Jinyang,LI Ying,WANG Fenglan.Effect of Psychological Distress on Posttraumatic Growth among Stroke Patients: The Mediating Role of Rumination[J].Nursing Journal Of Chinese People's Laberation Army,2021,38(07):18.[doi:10.3969/j.issn.1008-9993.2021.03.005]
[4]纪荣建,刘敏,王仁秀,等.仿人型机器人在儿童1型糖尿病管理中角色及应用的研究进展[J].军事护理,2021,38(04):77.[doi:10.3969/j.issn.1008-9993.2021.04.020]
[5]叶明明,张薇,邓锐,等.首发脑卒中患者照护者的家庭抗逆力水平及其影响因素[J].军事护理,2021,38(05):1.[doi:10.3969/j.issn.1008-9993.2021.05.001]
　YE Mingming,ZHANG Wei,DENG Rui,et al.Family Resilience in the Caregivers of First-stroke Patient and Its Influencing Factors[J].Nursing Journal Of Chinese People's Laberation Army,2021,38(07):1.[doi:10.3969/j.issn.1008-9993.2021.05.001]
[6]魏丽娟,刘丽英,张妙贤,等.克罗恩病儿童经口服全肠内营养体验的质性研究[J].军事护理,2021,38(05):59.[doi:10.3969/j.issn.1008-9993.2021.05.016]
　WEI Lijuan,LIU Liying,ZHANG Miaoxian,et al.Experience of Using Oral Exclusive Enteral Nutrition in Children with Crohn’s Disease: A Qualitative Study[J].Nursing Journal Of Chinese People's Laberation Army,2021,38(07):59.[doi:10.3969/j.issn.1008-9993.2021.05.016]
[7]周美玲,张荀芳,何炼英,等.卒中后患者神经源性膀胱管理的最佳证据总结[J].军事护理,2021,38(05):67.[doi:10.3969/j.issn.1008-9993.2021.05.018]
　ZHOU Meiling,ZHANG Xunfang,HE Lianying,et al.Management of Neurogenic Bladder in Patients after Stroke: A Summary of the Evidence[J].Nursing Journal Of Chinese People's Laberation Army,2021,38(07):67.[doi:10.3969/j.issn.1008-9993.2021.05.018]
[8]王燕,吴利平,林琴,等.以家庭为中心的个案管理在1型糖尿病患儿中的应用研究[J].军事护理,2021,38(05):78.[doi:10.3969/j.issn.1008-9993.2021.05.021]
　WANG Yan,WU Liping,LIN Qin,et al.Effect of Family-centered Case Management for Children with Type 1 Diabetes Mellitus[J].Nursing Journal Of Chinese People's Laberation Army,2021,38(07):78.[doi:10.3969/j.issn.1008-9993.2021.05.021]
[9]赵力慧,孙秋雪,郭玉成,等.脑卒中患者领悟社会支持与抑郁间的中介效应及心理弹性的调节效应[J].军事护理,2021,38(09):6.[doi:10.3969/j.issn.1008-9993.2021.09.002]
　ZHAO Lihui,SUN Qiuxue,GUO Yucheng,et al.Mediating Effect between Perceived Social Support and Depression among Stroke Patients and the Moderating Effect of Resilience[J].Nursing Journal Of Chinese People's Laberation Army,2021,38(07):6.[doi:10.3969/j.issn.1008-9993.2021.09.002]
[10]于晓丽,李晓凤,王金宁,等.多视角下老年脑卒中患者居家健康管理影响因素的质性研究[J].军事护理,2021,38(10):12.[doi:10.3969/j.issn.1008-9993.2021.10.004]
　YU Xiaoli,LI Xiaofeng,WANG Jinning,et al.Influencing Factors of Home Health Management of Elders with Stroke from Multiple Perspectives:A Qualitative Study[J].Nursing Journal Of Chinese People's Laberation Army,2021,38(07):12.[doi:10.3969/j.issn.1008-9993.2021.10.004]

备注/Memo

备注/Memo:
【 收稿日期 】 2022-09-16 【 修回日期 】 2023-02-23
【 基金项目 】 四川省2019年度社会科学“十三五”规划项目(SC19B032)
【 作者简介 】 李阳,硕士在读,电话:0817-2262113
【 通信作者 】 崔丽君,电话:0817-2262113
更新日期/Last Update: 2023-07-15