参考文献/References:
[1] World Health Organization.Childhood cancer[EB/OL].[2022-05-30].https://www.who.int/news-room/fact-sheets/detail/cancer-in-children.
[2] ZHENG R,PENG X,ZENG H,et al.Incidence,mortality and survival of childhood cancer in China during 2000-2010 period:a population-based study[J].Cancer Lett,2015,363(2):176-180.
[3] 成磊,王颖雯,刘芳,等.5~7岁住院癌症患儿生活质量自我报告与父母报告的一致性研究[J].护理学杂志,2021,36(7):31-33,54.
[4] 林欢,邹雨辰,杨敏霄,等.儿童自我报告及其主要照顾者报告结局一致性研究[J].解放军护理杂志,2020,37(5):45-48.
[5] U.S.Department of Health and Human Services FDA Center for Drug Evaluation and Research,U.S.Department of Health and Human Services FDA Center for Biologics Evaluation and Research,U.S.Department of Health and Human Services FDA Center for Devices and Radiological Health.Guidance for industry:patient-reported outcome measures:use in medical product development to support labeling claims:draft guidance[J/OL].[2022-12-20].https://hqlo.biomedcentral.com/articles/10.1186/1477-7525-4-79.DOI:10.1186/1477-7525-4-79.
[6] PINHEIRO L C,MCFATRICH M,LUCAS N,et al.Child and adolescent self-report symptom measurement in pediatric oncology research:a systematic literature review[J].Qual Life Res,2018,27(2):291-319.
[7] CHENG L,KANG Q,WANG Y,et al.Determining the effectiveness of using patient-reported outcomes in pediatric clinical practices[J].J Pediatr Nurs,2020(55):100-109.
[8] VARNI J W,BURWINKLE T M,KATZ E R,et al.The PedsQL in pediatric cancer: reliability and validity of the pediatric quality of life inventory generic core scales,multidimensional fatigue scale,and cancer module[J].Cancer,2002,94(7):2090-2106.
[9] 张洁文.儿童生存质量癌症模块量表中文版PedsQL3.0信度、效度分析及其初步应用[D].广州:中山大学,2009.
[10]张燕,绳宇.恶性骨肿瘤患儿生活质量及影响因素的研究[J].中华护理杂志,2015,50(4):423-427.
[11]BHATIA S,JENNEY M E,WU E,et al.The Minneapolis-Manchester quality of life instrument:reliability and validity of the youth form[J].J Pediatr,2004,145(1):39-46.
[12]EINBERG E L,KADRIJA I,BRUNT D,et al.Psychometric evaluation of a Swedish version of Minneapolis-Manchester quality of life-youth form and adolescent form[J/OL].[2022-12-20].https://hqlo.biomedcentral.com/articles/10.1186/1477-7525-11-79.DOI:10.1186/1477-7525-11-79.
[13]VLACHIOTI E,MATZIOU V,PERDIKARIS P,et al.Assessment of quality of life of children and adolescents with cancer during their treatment[J].Jpn J Clin Oncol,2016,46(5):453-461.
[14]YEH C H,CHAO K Y,HUNG L C.The quality of life for cancer children(QOLCC)in Taiwan(part I): reliability and construct validity by confirmatory factor analysis[J].Psychooncology,2004,13(3):161-170.
[15]CHANG P C,YEH C H.Agreement between child self-report and parent proxy-report to evaluate quality of life in children with cancer[J].Psychooncology,2005,14(2):125-134.
[16]YEH C H,CHANG C W,CHANG P C.Evaluating quality of life in children with cancer using children's self-reports and parent-proxy reports [J].Nurs Res,2005,54(5):354-362.
[17]WILLIAMS P D,WILLIAMS A R,KELLY K P,et al.A symptom checklist for children with cancer:the therapy-related symptom checklist-children[J].Cancer Nurs,2012,35(2):89-98.
[18]ALELAYAN H,HUANG H,YANG Y,et al.Psychometric validation of the simplified Chinese version of the therapy-related symptom checklist in children with cancer[J].J Pediatr Nurs,2022(64):32-39.
[19]WILLIAMS P D,ROBINSON J,WILLIAMS A R.Symptom occurrence and severity on the therapy-related symptom checklist for children among Hispanic pediatric oncology outpatients[J].Cancer Nurs,2014,37(3):12-20.
[20]WILLIAMS P D,PIAMJARIYAKUL USHANBERG R,et al.Monitoring and alleviation of symptom occurrence and severity among Thai children and adolescents during cancer treatments[J].J Pediatr Oncol Nurs,2015,32(6):417-428.
[21]TOMLINSON D,DUPUIS L L,GIBSON P,et al.Initial development of the symptom screening in pediatrics tool(SSPedi)[J].Support Care Cancer,2014,22(1):71-75.
[22]DUPUIS L L,JOHNSTON D L,BAGGOTT C,et al.Validation of the symptom screening in pediatrics tool in children receiving cancer treatments[J].J Natl Cancer Inst,2018,110(6):661-668.
[23]DE ANDRADE CADAMURO S,FRANCO J O,PAIVA C E,et al.Symptom screening in paediatrics tool for screening multiple symptoms in Brazilian patients with cancer:a cross-sectional validation study[J/OL].[2022-12-31].https://bmjopen.bmj.com/content/9/8/e028149.long.DOI:10.1136/bmjopen-2018-028149.
[24]LOVES R,PLENERT E,TOMLINSON V,et al.Changes in hunger among pediatric patients with cancer and hematopoietic stem cell transplantation recipients[J].Support Care Cancer,2020,28(12):5795-5801.
[25]HOCKENBERRY M J,HINDS P S,BARRERA P,et al.Three instruments to assess fatigue in children with cancer:the child,parent and staff perspectives[J].J Pain Symptom Manage,2003,25(4):319-328.
[26]BROWN A L,SOK P,TAYLOR O,et al.Cerebrospinal fluid metabolomic profiles associated with fatigue during treatment for pediatric acute lymphoblastic leukemia[J].J Pain Symptom Manage,2021,61(3):464-473.
[27]MAHDIZADEH F,MEHRABAN A H,FARANOUSH M,et al.Fatigue in children with cancer:reliability and validity of the Persian version of child,parent,and staff fatigue scale[J].Asia Pac J Oncol Nurs,2020,7(2):174-179.
[28]CHIANG Y C,HINDS P S,YEH C H,et al.Development and psychometric testing of a Chinese version of the fatigue scale-children in Taiwan[J].J Clin Nurs,2008,17(9):1201-1210.
[29]HO K Y,LI W H C,LAM K W K,et al.The psychometric properties of the Chinese version of the fatigue scale for children[J].Cancer Nurs,2016,39(5):341-348.
[30]STINSON J N,JIBB L A,NGUYEN C,et al.Construct validity and reliability of a real-time multidimensional smartphone app to assess pain in children and adolescents with cancer[J].Pain,2015,156(12):2607-2615.
[31]王佳姝,沈南平,戈晓华,等.中文版复合式癌症儿童疼痛自我报告评估系统的构建[J].解放军护理杂志,2017,34(22):8-13.
[32]JIBB L A,STEVENS B J,NATHAN P C,et al.Implementation and preliminary effectiveness of a real-time pain management smartphone app for adolescents with cancer:a multicenter pilot clinical study[J/OL].[2022-10-20].https://onlinelibrary.wiley.com/doi/10.1002/pbc.26554.DOI:10.1002/pbc.26554.
[33]ZHANG W,STINSON J,HUANG Q,et al.Identification and characteristics of the three subgroups of pain in Chinese children and adolescents with cancer[J].J Pediatr Nurs,2021(59):13-19.
[34]REEVE B B,MCFATRICH M,MACK J W,et al.Validity and reliability of the pediatric patient-reported outcomes version of the common terminology criteria for adverse events[J].J Natl Cancer Inst,2020,112(11):1143-1152.
[35]National Cancer Institute.Ped-PRO-CTCAE module certified translations and countries in which they have been tested[EB/OL].[2022-05-30].https://healthcaredelivery.cancer.gov/pro-ctcae/in-development-ped.html.
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