[1]崇海燕,陈燕茹,苏文丽,等.失智患者家庭照顾者照护体验质性研究的Meta整合[J].军事护理,2022,39(12):79-82.[doi:10.3969/j.issn.2097-1826.2022.12.020]
 CHONG Haiyan,CHEN Yanru,SU Wenli,et al.Care Experience of Family Caregivers of Patients with Dementia:A Meta-integration of Qualitative Studies[J].Nursing Journal Of Chinese People's Laberation Army,2022,39(12):79-82.[doi:10.3969/j.issn.2097-1826.2022.12.020]
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失智患者家庭照顾者照护体验质性研究的Meta整合
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《军事护理》[ISSN:2097-1826/CN:31-3186/R]

卷:
39
期数:
2022年12期
页码:
79-82
栏目:
循证护理
出版日期:
2022-12-15

文章信息/Info

Title:
Care Experience of Family Caregivers of Patients with Dementia:A Meta-integration of Qualitative Studies
文章编号:
2097-1826(2022)12-0079-04
作者:
崇海燕陈燕茹苏文丽黄亚楠王鑫钰陈孝利陈梦云马玉霞
(兰州大学 护理学院循证护理中心,甘肃 兰州 730011)
Author(s):
CHONG HaiyanCHEN YanruSU WenliHUANG YananWANG XinyuCHEN XiaoliCHEN MengyunMA Yuxia
(Center for Evidence-based Nursing,School of Nursing,Lan Zhou University,Lanzhou 730011,Gansu Province,China)
关键词:
失智症 家庭照顾者 照护体验 质性研究 Meta整合
Keywords:
dementia family caregiver care experience qualitative research meta-synthesis
分类号:
R47
DOI:
10.3969/j.issn.2097-1826.2022.12.020
文献标志码:
A
摘要:
目的 全面了解失智患者家庭照顾者的情感体验和内心需求,为提高和改善照顾者生活质量提供参考。方法 全面检索PubMed、Web of Science、Embase、Cochrane Library、中国知网、万方、维普、中国生物医学文献数据库,纳入所有关于失智患者家庭照顾者照护体验和需求的质性研究,检索时限为2015年1月至2021年12月。结果 共纳入14篇文献,提炼出34个结果、归纳为8个新类别,合成3个整合结果:照护负担沉重、积极应对压力、渴望获得支持。结论 家庭、社区、医疗机构、政府和社会应充分关注失智患者家庭照顾者的照护情感体验和需求,并给予相应的支持和帮助,以提升其照护能力及生活质量。
Abstract:
Objective To comprehensively understand the emotional experience and inner needs of family caregivers of patients with dementia,so as to provide reference for improving the quality of life of caregivers.Methods PubMed,Web of Science,Embase,Cochrane Library,CNKI,Wanfang,VIP,and China Biomedical literature database were searched to include all qualitative studies on the caregiving experience and needs of family caregivers of patients with dementia.The search period was from January 2015 to December 2021.Results A total of 14 literatures were included,and 34 results were extracted and summarized into 8 new categories.3 integrated results were synthesized,namely heavy care burden,actively cope with stress and desired for support.Conclusions Families,communities,medical institutions,the government and society should pay full attention to the emotional experience and needs of the family caregivers of dementia patients,and provide corresponding support and help to improve their caring ability and quality of life.

参考文献/References:

[1] Alzheimer's Disease International.World alzheimer report 2019:attitudes to dementia[R/OL].[2022-03-10].http://www.daviddesigns.co.uk/research/World.
[2] GBD 2016 Neurology Collaborators.Global,regional,and national burden of neurological disorders,1990-2016:a systematic analysis for the global burden of disease study 2016[J].Lancet Neurol,2019,18(5):459-480.
[3] JOLING K J,VAN MARWIJK H W,VELDHUIJZEN A E,et al.The two-year incidence of depression and anxiety disorders in spousal caregivers of persons with dementia:who is at the greatest risk?[J].Am J Geriatr Psychiatry,2015,23(3):293-303.
[4] 胡雁.如何开展质性研究的系统评价和Meta整合[J].上海护理,2020,20(7):1-5.
[5] LOCKWOOD C,MUNN Z,PORRITT K.Qualitative research synthesis:methodological guidance for systematic reviewers utilizing meta-aggregation[J].Int J Evid Based Healthc,2015,13(3):179-187.
[6] DAI B,MAO Z,WU B,et al.Family caregiver's perception of Alzheimer's disease and caregiving in Chinese culture[J].Soc Work Public Health,2015,30(2):185-196.
[7] SAMSON Z B,PARKER M,DYE C,et al.Experiences and learning needs of African American family dementia caregivers[J].Am J Alzheimers Dis Other Demen,2016,31(6):492-501.
[8] TUOMOLA J,SOON J,FISHER P,et al.Lived experience of caregivers of persons with dementia and the impact on their sense of self:a qualitative study in Singapore[J].J Cross Cult Gerontol,2016,31(2):157-172.
[9] 乔雨晨,常红,孟茜.痴呆患者照顾者需求的质性研究[J].解放军护理杂志,2016,33(3):19-22.
[10]SPIGELMYER P C,HUPCEY J E,SMITH C A,et al.Resistiveness to care as experienced by family caregivers providing care for someone with dementia[J].J Nurs Scholarsh,2018,50(1):36-46.
[11]TATANGELO G,MCCABE M,MACLEOD A,et al.“I just don't focus on my needs.” The unmet health needs of partner and offspring caregivers of people with dementia:A qualitative study[J].Int J Nurs Stud,2018,77(1):8-14.
[12]PANG R C,LEE D T.Finding positives in caregiving:The unique experiences of Chinese spousal caregivers of persons with young-onset dementia[J].Dementia(London),2019,18(5):1615-1628.
[13]BJORGE H,SAETEREN B,ULSTEIN I D.Experience of companionship among family caregivers of persons with dementia:a qualitative study[J].Dementia(London),2019,18(1):228-244.
[14]MORENO-CAMARA S,PALOMINO-MORAL P A,MORAL-FERNANDEZ L,et al.Perceived needs of the family caregivers of people with dementia in a mediterranean setting:a qualitative study[J/OL].[2022-03-01].https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6466168/.DOI:10.3390/ijerph16060993.
[15]VARIK M,MEDAR M,SAKS K.Informal caregivers' experiences of caring for persons with dementia in Estonia:a narrative study[J].Health Soc Care Community,2020,28(2):448-455.
[16]李杨,孙慧敏,张秀秀,等.早期阿尔茨海默病病人及其主要照顾者病耻感质性研究[J].护理研究,2020,34(20):3719-3722.
[17]LIU J,LOU Y,WU B,et al.“I've been always strong to conquer any suffering:”challenges and resilience of Chinese American dementia caregivers in a life course perspective[J].Aging Ment Health,2021,25(9):1716-1724.
[18]KOKORELIAS K M,GIGNAC M A M,NAGLIE G,et al.A grounded theory study to identify caregiving phases and support needs across the Alzheimer's disease trajectory[J].Disabil Rehabil,2022,44(7):1050-1059.
[19]OZCAN M,AKYAR I.Caregivers' experiences of patients with moderate-stage Alzheimer's disease:a qualitative study[J].Psychogeriatrics,2021,21(5):763-772.
[20]ABRAHAMS R,LIU K P Y,BISSETT M,et al.Effectiveness of interventions for co-residing family caregivers of people with dementia:systematic review and meta-analysis[J].Aust Occup Ther J,2018,65(3):208-224.
[21]GARLAND E L,FREDRICKSON B,KRING A M,et al.Upward spirals of positive emotions counter downward spirals of negativity:insights from the broaden-and-build theory and affective neuroscience on the treatment of emotion dysfunctions and deficits in psychopathology[J].Clin Psychol Rev,2010,30(7):849-864.
[22]PALACIO G C,KRIKORIAN A,GOMEZ-ROMERO M J,et al.Resilience in caregivers:a systematic review[J].Am J Hosp Palliat Care,2020,37(8):648-658.
[23]WELLA K,CHILEMBA E,NAMATHANGA A,et al.Social support for women after fistula repair:a scoping review[J/OL].[2022-03-01].https://www.sciencedirect.com/science/article/pii/S1877575621000562?via%3Dihub.DOI:10.1016/j.srhc.2021.100649.

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备注/Memo

备注/Memo:
【 收稿日期 】 2022-04-07 【 修回日期 】 2022-10-26
【 基金项目 】 国家自然科学基金项目(72274087); 甘肃省自然科学基金项目(20JR10RA603); 兰州大学“中央高校基本科研业务费专项资金”项目(lzujbky-2021-33)
【 作者简介 】 崇海燕,硕士在读,护师,从事老年护理研究
【 通信作者 】 马玉霞,电话:0931-8556807
更新日期/Last Update: 2022-12-15