[1]曾庆威,王菲菲,王姗姗,等.孤独症患儿照护者不同阶段疾病感知特征的现象学探讨[J].军事护理,2023,40(12):73-76.[doi:10.3969/j.issn.2097-1826.2023.12.018]
　ZENG Qingwei,WANG Feifei,WANG ShanShan,et al.A Phenomenological Exploration of the Characteristics of Disease Perception at Different Stages Among Caregivers of Children with Autism[J].Nursing Journal Of Chinese People's Laberation Army,2023,40(12):73-76.[doi:10.3969/j.issn.2097-1826.2023.12.018]
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孤独症患儿照护者不同阶段疾病感知特征的现象学探讨
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《军事护理》[ISSN:2097-1826/CN:31-3186/R]

卷:
40
期数:
2023年12期
页码:
73-76
栏目:
研究荟萃
出版日期:
2023-12-15

文章信息/Info

Title:
A Phenomenological Exploration of the Characteristics of Disease Perception at Different Stages Among Caregivers of Children with Autism
文章编号:
2097-1826(2023)12-0073-04
作者:
曾庆威1; 王菲菲2; 王姗姗3; 刘宇1; 胡素芬1
(1.深圳市龙岗区妇幼保健院 儿童康复科,广东 深圳 518172; 2.赣南医学院 护理学院,江西 赣州 341000; 3.广东省人民医院 国际健康研究中心,广东 广州 519041)
Author(s):
ZENG Qingwei1; WANG Feifei2; WANG ShanShan3; LIU Yu1; HU Sufen1
(1.Child Rehabilitation Department,Shenzhen Longgang District Maternal and Child Healthcare Hospital,Shenzhen 518100,Guangdong Province,China; 2.School of Nursing,Gannan Medical College,Ganzhou 341000,Jiangxi Province,China; 3.International Health Research Center,Guangdong Provincial People's Hospital,Guangzhou 510030,Guangdong Province,China)
关键词:
孤独症;  照护者;  疾病感知;  阶段性
Keywords:
autism;  caregiver;  disease perception;  phase wise
分类号:
R473.2
DOI:
10.3969/j.issn.2097-1826.2023.12.018
文献标志码:
A
摘要:
目的 探讨孤独症患儿照护者不同阶段疾病感知特征,为制订针对性的干预措施提供依据。方法 采用现象学研究方法,对13例孤独症患儿照护者进行半结构式深度访谈,运用Colaizzi 7 步分析法进行资料分析、提炼主题。结果 孤独症患儿照护者疾病感知呈现阶段性特征,分为疾病确诊前、疾病诊断阶段、疾病干预3个阶段。结论 孤独症患儿照护者不同阶段疾病感知具有动态演变的特征,医护人员应知晓其阶段性特点,制订相应的支持方案,提升其照护能力。
Abstract:
Objective To explore the characteristics of disease perception at different stages among caregivers of children with autism.Methods Using phenomenological research,a semi-structured in-depth interview was conducted on 13 caregivers of children with autism.The data was analyzed and themes were extracted using the Colaizzi 7-step analysis method.Results Caregivers of children with autism showed phased characteristics in disease perception before diagnosis stage,the diagnosis being confirmed stage,and the intervention stage.Conclusions Caregivers of children with autism have dynamic evolving characteristics in disease perception at different stages.Medical staff should be aware of their phased characteristics,develop corresponding support plans,and improve their capabilities of giving care.

参考文献/References:

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备注/Memo

备注/Memo:
【收稿日期】2023-08-13【修回日期】2023-11-09
【作者简介】曾庆威,硕士,护士,电话:0755-28933003
【通信作者】胡素芬,电话:0755-28933003
更新日期/Last Update: 2023-12-15