[1]夏毓娴,傅丽娟,罗雯懿,等.复杂先天性心脏病姑息术后照顾者的疾病管理困难现状及其影响因素[J].军事护理,2022,39(07):29-32.[doi:10.3969/j.issn.2097-1826.2022.07.008]
　XIA Yuxian,FU Lijuan,LUO Wenyi,et al.Status Quo of Disease Management Difficulties Among Caregivers of Children After Complex Congenital Heart Disease Palliative Surgery and Its Influencing Factors[J].Nursing Journal Of Chinese People's Laberation Army,2022,39(07):29-32.[doi:10.3969/j.issn.2097-1826.2022.07.008]
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复杂先天性心脏病姑息术后照顾者的疾病管理困难现状及其影响因素
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《军事护理》[ISSN:2097-1826/CN:31-3186/R]

卷:
39
期数:
2022年07期
页码:
29-32
栏目:
论著
出版日期:
2022-07-15

文章信息/Info

Title:
Status Quo of Disease Management Difficulties Among Caregivers of Children After Complex Congenital Heart Disease Palliative Surgery and Its Influencing Factors
文章编号:
2097-1826(2022)07-0029-04
作者:
夏毓娴1; 2; 傅丽娟2; 罗雯懿2; 倪平2; 姜嘉媛3
(1.上海交通大学 护理学院,上海 200025; 2.上海交通大学医学院附属上海儿童医学中心 心胸外科,上海 200127; 3.上海交通大学医学院 临床研究中心,上海 200025)
Author(s):
XIA Yuxian1; 2; FU Lijuan2; LUO Wenyi2; NI Ping2; JIANG Jiayuan3
(1.School of Nursing,Shanghai Jiao Tong University,Shanghai 200025,China; 2.Department of Cardiovascular and Thoracic Surgery,Shanghai Children's Medical Center,Shanghai Jiao Tong University School of Medicine,Shanghai 200127,China; 3.Clinical Research Institute,Shanghai Jiao Tong University School of Medicine,Shanghai 200025,China)
关键词:
先天性心脏病;  姑息术;  照顾者;  疾病管理
Keywords:
congenital heart disease;  palliative surgery;  caregiver;  disease management
分类号:
R473.54; R828
DOI:
10.3969/j.issn.2097-1826.2022.07.008
文献标志码:
A
摘要:
目的 探索复杂先天性心脏病患儿姑息术后照顾者的疾病管理困难现状,分析影响其疾病管理困难的因素。方法 便利抽样选择245例于某儿童医学中心实施过姑息术的复杂先天性心脏病患儿的主要照顾者,采用家庭管理量表(family management measure,FaMM)中疾病管理困难分量表和家庭功能评定表(family assessment device,FAD)对其疾病管理困难状况进行调查,分析影响其疾病管理困难的因素。结果 本组FaMM平均得分为(41.67±10.06)分,FAD平均分值为(2.32±0.36)分; 回归分析显示:患儿的手术年龄大、手术至随访的时间<1年、心功能分级高、FAD中照顾者的角色和总的功能两个维度的分值是影响疾病管理困难的主要因素(均P<0.05)。结论 复杂先天性心脏病姑息术后照顾者感受到的疾病管理困难程度较高,手术年龄大、术后1年内、术后心功能IV级的患儿家庭更甚; 医护人员应给予针对性的健康教育支持和定期随访评估,以提高照顾者对患儿疾病的管理能力。
Abstract:
Objective To explore the status quo of disease management difficulties among caregivers of children after complex congenital heart disease palliative surgery and analyze the influencing factors of disease management difficulties.Methods Convenience sampling method was used to select 245 primary caregivers of children who received complex congenital heart disease palliative surgery in a children's medical center.The disease management difficulty subscale of Family Management Measure(FaMM)and Family Assessment Device(FAD)were adopted to investigate disease management difficulties and analyze the influencing factors.Results The average score of FaMM was(41.67±10.06)and the average score of FAD was(2.32±0.36).Regression analysis showed that the older surgical age of children,follow-up time after surgery within one year,high cardiac function grade,the scores of role and total function scales of FAD were the main factors that affected the disease management difficulties(all P<0.05).Conclusions Caregivers of children after complex congenital heart disease palliative surgery report high level of perceived disease management difficulties.Those families who care for the children with older surgical age,receiving surgery within one year,and at cardiac function grade IV after surgery may encounter more difficulties.Healthcare professionals should provide targeted health education support and regular follow-up assessment,so as to improve caregivers' ability to manage the children's diseases.

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相似文献/References:

[1]倪平,管咏梅,徐卓明,等.先天性心脏病儿童术后营养不良的危险因素及干预策略研究进展[J].军事护理,2021,38(10):54.[doi:10.3969/j.issn.1008-9993.2021.10.014]

备注/Memo

备注/Memo:
【 收稿日期 】 2022-01-13 【 修回日期 】 2022-06-13
【 基金项目 】 上海市卫生健康委员会卫生行业临床研究专项立项项目(20194Y0479)
【 作者简介 】 夏毓娴,硕士在读,主管护师,从事心胸外科护理工作
【 通信作者 】 傅丽娟,电话:021-38626069
更新日期/Last Update: 2022-07-15