[1]张海银,郭瑜洁,秦相清.炎症性肠病患者工作体验的质性研究[J].军事护理,2021,38(10):8-11.[doi:10.3969/j.issn.1008-9993.2021.10.003]
 ZHANG Haiyin,GUO Yujie,QIN Xiangqing.Work Experience of Patients with Inflammatory Bowel Disease: A Qualitative Study[J].Nursing Journal Of Chinese People's Laberation Army,2021,38(10):8-11.[doi:10.3969/j.issn.1008-9993.2021.10.003]
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炎症性肠病患者工作体验的质性研究
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《军事护理》[ISSN:2097-1826/CN:31-3186/R]

卷:
38
期数:
2021年10期
页码:
8-11
栏目:
论著
出版日期:
2021-10-15

文章信息/Info

Title:
Work Experience of Patients with Inflammatory Bowel Disease: A Qualitative Study
文章编号:
1008-9993(2021)10-0008-04
作者:
张海银12郭瑜洁1秦相清2
(1.南通大学医学院 护理学院,江苏,南通226001; 2.南通市第三人民医院 消化科,江苏 南通 226001)
Author(s):
ZHANG Haiyin12GUO Yujie1QIN Xiangqing2
(1.School of Nursing,Medical College of Nantong University,Nantong 226001,Jiangsu Province,China; 2.Department of Digestive Medicine,Nantong Third People's Hospital,Nantong 226001,Jiangsu Province,China)
关键词:
炎症性肠病 工作体验 质性研究
Keywords:
inflammatory bowel disease work experience qualitative study
分类号:
R473.57
DOI:
10.3969/j.issn.1008-9993.2021.10.003
文献标志码:
A
摘要:
目的 探索炎症性肠病患者工作中的体验及其应对策略。方法 采用质性研究中的现象学研究法,于2019年12月至2020年9月对南通市某三级甲等医院的16名炎症性肠病患者进行半结构式访谈,使用Colaizzi 7步分析法对原始资料进行整理分析。结果 炎症性肠病患者的工作体验可划分为3个主题,即带病工作患者面临诸多的问题; 患者对疾病的认知影响工作态度; 患者坚持工作的意愿和行为的驱动力来源。结论 炎症性肠病患者工作中面临着来自生理、心理、社会等各方面的感受和体验。医护人员应该在深入了解其工作感受的基础上,明确其在工作中存在的问题,给予针对性的干预和指导。预防和纠正不良应对方式,促进和强化有效应对方式,改善其工作和生活质量。
Abstract:
Objective To explore the work experience and coping strategies of patients with inflammatory bowel disease.Methods A semi-structured interview was conducted among 16 patients with inflammatory bowel disease in a tertiary hospital in Nantong from December 2019 to September 2020 by the phenomenological research method in the qualitative research, and the original data are sorted and analyzed by Colaizzi 7-step analysis method.Results The work experience of patients with inflammatory bowel disease can be divided into three themes,namely.the problems faced by those who work with the disease,the cognitive impact of the disease on work attitude,and the willingness and motivation of patients to work.Conclusions Patients with inflammatory bowel disease are faced with physical,psychological,and social feelings and experiences at work.Medical staff should understand their work experience,identify the problems,and give intervention and guidance accordingly.Medical staff should also prevent and correct negative coping styles,promote and strengthen effective coping styles,and improve their work and life quality.

参考文献/References:

[1] KAPLAN G G.The global burden of IBD:from 2015 to 2025[J].Nat Rev Gastroenteml Hepatol,2015,12(12):720-727.
[2] CARLSSON E, PERSSOM E.Living with intestinal failure caused by Crohn disease: not letting the disease conquer life[J].Gastroenterol Nurs,2015,38(1):12-20.
[3] SAMMUT J,SCERRI J,XUEREB R B.The lived experience of adults with ulcerative colitis[J]. J Clin Nurs,2015,24(17-18):2659-2667.
[4] 许涵.炎症性肠病患者残疾程度的临床研究[D].苏州:苏州大学,2019.
[5] LESO V,GERVETTI P,MACRINI M C,et al.Inflammatory bowel diseases and work disability:a systematic review of predictive factors[J].Eur Rev Med Pharmacol Sci,2021,25(1):165-181.
[6] 薛鲜敏,万健,张玉洁,等.炎症性肠病患者的疾病负担和护理者负担[J].现代消化及介入诊疗,2019,24(8): 933-935.
[7] 吴林晔.炎症性肠病患者自我形象体验的质性研究[D].杭州:浙江中医药大学,2018.
[8] 朱丹玲.炎症性肠病患者自我管理体验的质性研究[D].杭州:浙江中医药大学,2019.
[9] 杜若飞,陈长英.心肌梗死患者重返工作岗位后心理体验的研究[J].中华护理杂志,2018,53(8):920-925.
[10]COLAIZZI P.Psychological research as the phenomenologist views it[M].New York:Oxford University Press,1978:80-90.
[11]VAN ASSCHE G,PEYRIN-BIROULET L,STURM A,et al.Burden of disease and patient-reported outcomes in patients with moderate to severe ulcerative colitis in the last 12 months-Multicenter European cohort study[J].Dig Liver Dis,2016,48(6):592-600.
[12]CZUBER-DOCHAN W,REAM E,NORTON C.Review article:description and management of fatigue in inflammatory bowel disease[J].Aliment Pharmacol Ther,2013,37(5):505-516.
[13]LUO X P,MAO R,CHEN B L,et al.Over-reaching beyond disease activity:the influence of anxiety and medical economic burden on health-related quality of life in patients with inflammatory bowel disease[J].Patient Prefer Adherence,2017(11):23-31.
[14]RUBIN D T,DUBINSKY M C,PANACCIONE R,et al.The impact of ulcerative colitis on patients' lives compared to other chronic diseases:a patient survey[J].Dig Dis Sci,2010,55(4):1044-1052.
[15]RYEONGB K,CHO J.Changes after cancer diagnosis and return to work:experience of Korean cancer patients[J/OL].[2021-02-01].https://bmccancer.biomedcentral.com/articles/10.1186/s12885-021-07812-w.
[16]罗丹,林征,卞秋桂,等.炎症性肠病病人感知病耻感与生活质量的相关性研究[J].护理研究,2018,32(13):2027-2031.
[17]JONES J L,NGUYEN G C,BENCHIMOL E I,et al.The impact of inflammatory bowel disease in Canada 2018:quality of life [J].J Can Assoc Gastroenterol,2019,2(Suppl 1):S42-S48.
[18]王丹艳,陈焰,周云仙.青少年炎症性肠病患者夏令营体验的质性研究[J].解放军护理杂志,2019,36(10):29-31.
[19]卜凡莉,黄骞,王珂,等.炎症性肠病病人患病体验质性研究的Meta整合[J].护理研究,2019,33(5):754-761.
[20]关玉霞,尤丽丽,何叶,等.炎症性肠病病人自我效能、疾病活动度与生存质量的相关性[J].护理研究,2020,34(11):1921-1925.
[21]张新,崔菡斐,董凤齐,等.癌症生存者重返工作过程中真实体验的Meta整合[J].中国护理管理,2020,20(12):1838-1844.
(本文编辑:郁晓路)

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备注/Memo

备注/Memo:
【 收稿日期 】 2021-02-26 【 修回日期 】 2021-08-24
【 基金项目 】 江苏省自然科学基金面上项目(BK20191447); 南通市市级科技计划项目(MS12020039)
【 作者简介 】 张海银,本科,主管护师,从事消化科护理工作
【 通信作者 】 郭瑜洁,电话:0513-85051870
更新日期/Last Update: 2021-10-15