[1]倪飞霞,蔡婷婷,顾艳荭,等.患者报告结局测量信息系统在炎症性肠病患者中的研究进展[J].军事护理,2021,38(07):64-66.[doi:10.3969/j.issn.1008-9993.2021.07.016]
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患者报告结局测量信息系统在炎症性肠病患者中的研究进展
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《军事护理》[ISSN:2097-1826/CN:31-3186/R]

卷:
38
期数:
2021年07期
页码:
64-66
栏目:
综述
出版日期:
2021-07-15

文章信息/Info

Title:
Application of Patient-Reported Outcomes Measurement Information System in Patients with Inflammatory Bowel Disease: A Review
文章编号:
1008-9993(2021)07-0064-04
作者:
倪飞霞1蔡婷婷1顾艳荭2袁长蓉1
(1.复旦大学 护理学院,上海 200032; 2.复旦大学附属上海市第五人民医院 护理部,上海 200240)
关键词:
患者报告结局测量信息系统 炎症性肠病 综述
分类号:
R473.57
DOI:
10.3969/j.issn.1008-9993.2021.07.016
文献标志码:
A

参考文献/References:

[1] POLAK E J,O'CALLAGHAN F,OATEN M.Perceptions of IBD within patient and community samples:a systematic review[J].Psychol Health,2020,35(4):425-448.
[2] CHACHU K A,OSTERMAN M T.How to diagnose and treat IBD mimics in the refractory IBD patient who does not have IBD[J].Inflamm Bowel Dis,2016,22(5):1262-1274.
[3] BRADLEY S M,RUMSFELD J S,HO P M.Incorporating health status in routine care to improve health care value:the VA patient reported health status assessment(PROST)system[J].Jama,2016,316(5):487-488.
[4] WILLIET N,SANDBORN W J,PEYRIN-BIROULET L.Patient-reported outcomes as primary end points in clinical trials of inflammatory bowel disease[J].Clin Gastroenterol Hepatol,2014,12(8):1246-1256.
[5] 刘砚燕,姚静静,陈如男,等.患者报告结局测量信息系统(PROMIS)的研究进展[J].现代预防医学,2013,40(13):2440-2443.
[6] CELLA D,YOUNT S,ROTHROCK N,et al.The patient-reported outcomes measurement information system(PROMIS):progress of an NIH roadmap cooperative group during its first two years[J].Med Care,2007,45(5):S3-S11.
[7] 皋文君,袁长蓉.患者自我报告结局测量信息系统在国外的应用进展[J].中华护理杂志,2018,53(11):1401-1405.
[8] 李丹钰,蔡婷婷,臧娴,等.患者报告结局测量信息系统在心血管疾病中的应用进展[J].护士进修杂志,2021,36(4):294-297.
[9] SPIEGEL B M,HAYS R D,BOLUS R,et al.Development of the NIH patient-reported outcomes measurement information system(PROMIS)gastrointestinal symptom scales[J].Am J Gastroenterol,2014,109(11):1804-1814.
[10]KOCHAR B,MARTIN C F,KAPPELMAN M D,et al.Evaluation of gastrointestinal patient reported outcomes measurement information system(GI-PROMIS)symptom scales in subjects with inflammatory bowel diseases[J].Am J Gastroenterol,2018,113(1):72-79.
[11]KAPPELMAN M D,LONG M D,MARTIN C,et al.Evaluation of the patient-reported outcomes measurement information system in a large cohort of patients with inflammatory bowel diseases[J].Clin Gastroenterol Hepatol,2014,12(8):1315-1323.
[12]ISHAK W W,PAN D,STEINER A J,et al.Patient-reported outcomes of quality of life,functioning,and GI/psychiatric symptom severity in patients with inflammatory bowel disease(IBD)[J].Inflamm Bowel Dis,2017,23(5):798-803.
[13]BERNSTEIN C N,ZHANG L,LIX L M,et al.The validity and reliability of screening measures for depression and anxiety disorders in inflammatory bowel disease[J].Inflamm Bowel Dis,2018,24(9):1867-1875.
[14]FORREST C B,FORREST K D,CLEGG J L,et al.Establishing the content validity of PROMIS pediatric pain interference,fatigue,sleep disturbance,and sleep-related impairment measures in children with chronic kidney disease and Crohn's disease[J].J Patient Rep Outcomes,2020,4(1):11-18.
[15]ARVANITIS M,DEWALT D A,MARTIN C F,et al.patient-reported outcomes measurement information system in children with Crohn's disease[J].J Pediatr,2016(174):153-159.
[16]BRENNER E J,LONG M D,MANN C M,et al.Responsiveness of the patient-reported outcomes measurement information system(PROMIS)pediatric measures to changes in disease status and quality of life among children and adolescents with Crohn's disease[J].Inflamm Bowel Dis,2021,27(3):344-351.
[17]CONLEY S,JEON S,PROCTOR D D,et al.Longitudinal changes in symptom cluster membership in inflammatory bowel disease[J].J Nurs Scholarsh,2018,50(5):473-481.
[18]CONLEY S,PROCTOR D D,JEON S,et al.Symptom clusters in adults with inflammatory bowel disease[J].Res Nurs Health,2017,40(5):424-434.
[19]LEE A D,SPIEGEL B M,HAYS R D,et al.Gastrointestinal symptom severity in irritable bowel syndrome,inflammatory bowel disease and the general population[J/OL]. [2016-12-16].https://pubmed.ncbi.nlm.nih.gov/27981684/.
[20]ONA S,JAMES K,ANANTHAKRISHNAN A N,et al.Association between vulvovaginal discomfort and activity of inflammatory bowel diseases[J].Clin Gastroenterol Hepatol,2020,18(3):604-611.
[21]ELURI S,CROSS R K,MARTIN C,et al.Inflammatory bowel diseases can adversely impact domains of sexual function such as satisfaction with sex life[J].Dig Dis Sci,2018,63(6):1572-1582.
[22]ZEITZ J,AK M,MULLER-MOTTET S,et al.Pain in IBD patients:very frequent and frequently insufficiently taken into account[J/OL].[2016-06-22]. https://pubmed.ncbi.nlm.nih.gov/27332879/.
[23]FALLING C L,STEBBINGS S,BAXTER D G,et al.Central sensitization inventory mediates the relationship between inflammatory bowel disease activity and worse musculoskeletal pain experiences[J].Pain Pract,2020,20(1):24-33.
[24]CONLEY S,JEON S,LEHNER V,et al.Sleep characteristics and rest-activity rhythms are associated with gastrointestinal symptoms among adults with inflammatory bowel disease[J].Dig Dis Sci,2021,66(1):181-189.
[25]QAZI T,VERMA R,HAMILTON M J,et al.The use of actigraphy differentiates sleep disturbances in active and inactive Crohn's disease[J].Inflamm Bowel Dis,2019,2(6):1044-1053.
[26]MANCINA R M,PAGNOTTA R,PAGLIUSO C,et al.Gastrointestinal symptoms of and psychosocial changes in inflammatory bowel disease:a nursing-led cross-sectional study of patients in clinical remission[J].Medicina(Kaunas),2020,56(1):45-54.
[27]ARRUDA J M,BOGETZ A L,VELLANLI S,et al.Yoga as adjunct therapy for adolescents with inflammatory bowel disease:A pilot clinical trial[J].Complement Ther Med,2018,41(6):99-104.
[28]STEVENS B W,BORREN N Z,VELONIAS G,et al.Vedolizumab therapy is associated with an improvement in sleep quality and mood in inflammatory bowel diseases[J].Dig Dis Sci,2017,62(1):197-206.
[29]LEE C K,MELMED G Y,MANN A,et al.A Multidisciplinary approach to biopsychosocial care for adults with inflammatory bowel disease:a pilot study[J].Inflamm Bowel Dis,2018,24(12):2550-2554.
[30]SINGH S,DULAI P S,ZARRINPAR A,et al.Obesity in IBD:epidemiology,pathogenesis,disease course and treatment outcomes[J].Nat Rev Gastroenterol Hepatol,2017,14(2):110-121.
[31]JAIN A,NGUYEN N H,PROUDFOOT J A,et al.Impact of obesity on disease activity and patient-reported outcomes measurement information system(PROMIS)in inflammatory bowel diseases[J].Am J Gastroenterol,2019,114(4):630-639.
[32]ANANTHAKRISHNAN A N,LONG M D,MARTIN C F,et al.Sleep disturbance and risk of active disease in patients with Crohn's disease and ulcerative colitis[J].Clin Gastroenterol Hepatol,2013,11(8):965-971.
(本文编辑:沈园园)

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备注/Memo

备注/Memo:
【 收稿日期 】 2021-03-07 【 修回日期 】 2021-06-21
【 基金项目 】 国家自然科学基金项目(71874032)
【 作者简介 】 倪飞霞,硕士在读,从事慢性病管理研究
【 通信作者 】 袁长蓉,电话:021-64431803
更新日期/Last Update: 2021-07-15